I saw the show on TLC and his sister has been taking care of him all his life and saved money to take him to a DR. in London. They get there and he decides against the surgery because they need to do blood transfusions. Because he's a Jehovas Witness, he refused, so they said they could still do it in small sessions. He had still not decided and his poor sister was really mad. The last I heard he agreed to the surgery but now there is word that he died having it done. I don't know.